T1 4 a Day – Guest Post

November is National Diabetes Awareness Month.
I bet you didn’t know that…
It’s OK, I didn’t until now either, don’t feel bad.
It’s funny how you start paying attention to things when you are afflicted by them.
That may sound shallow, but it’s the truth.

JDRF is the leading global organization focused on type 1 diabetes (T1D) research.
As a part of NDM, they came up with the most amazing thing…
A mobile experience that allows anyone to experience how a Type 1′s day-to-day is like.

I thought this sounded like a perfect way for 2 people, who are very close to me, could experience what I really go through.
I asked Karen, my best friend here in Trinidad, and my sister to participate.
They said YES.
This is where I sign off…
Karen and Amber are taking over the blog today.

Here is their Guest Post.

Karen’s up first…

I just completed a 24 hour text message program that was designed to show a non-diabetic person what a someone with diabetes goes through on a daily basis just to live with this life-altering disease.
Even though I have been with my friend Corey every day since she was diagnosed, I had no idea what she really deals with minute by minute.  Being diabetic is a full time job.
It is frustrating, upsetting, emotional, lonely, time consuming, constant, scary, tiring, painful, serious, and just plain hard!
I am thankful that I do not have diabetes and I am committed to praying daily for Corey because she does.
Having diabetes has changed her life forever, but amazingly, she is learning to live with it & finding ways to share her journey!
I am proud of her every day!
She reminds me to never give up!
If you gave a bad day & a sleepless night, you just get up the next morning & greet the new day with a victorious attitude!
I love my best friend Corey and she is a champion :)

~

Would u suggest this experience for others?
Most people in your life don’t realize the effect this disease has on daily living.
Doing this 24 hour experience, is an extremely valuable tool for those who do not have diabetes, but are in the life of someone who does.  I highly recommend it to all family, close friends,  and work mates of any type one diabetic!
-
What is one thing u were surprised by or learned, by this exercise?
 I learned that having diabetes is constant.
You have to be on call as your own health care provider 24 hours a day.
Everything effects blood sugar levels!
~
Here’s my sister’s experience…
  
Yesterday,  I was part of a program where i got to experience what having Type 1 Diabetes would be like, for a day.
For 24 hours, I received texts alerting me to check my sugar, informing me what to eat to regulate my levels and so on.
This was very informative.
My sister was recently diagnosed with Diabetes, and is learning how to deal with this on a daily basis.
Although in this program i only simulated a day in her life, I got a general idea of how hard it is to have diabetes.
I was lucky enough not to have to poke myself or give multiple insulin injections.  
This has been a life changing diagnosis for my sister and i commend her on the strength she has shown in dealing with it.
I know, i could never do it.
~
Would u suggest this experience for others?
I would suggest people who have loved ones with Type 1.
Try this experience out, so you get a better understanding of how time consuming and life changing having diabetes is.
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What is one thing u were surprised by or learned, by this exercise?
I learned its a constant thing on a daily basis.
It’s not like having high blood pressure, where u take a pill in the morning and your good all day.
With diabetes u always have to have medical supplies on you, snacks and always pay attention to how your body feels.
Highs and lows with sugar levels, affect everything from your emotions to your energy level.
It seems exhausting. 
-

Are YOU up for the challenge?

The experience sends you 24 hour a day texts, a real simulation of what a T1′s life is like…
8am, 1pm, 3am, etc.
Wake up sweaty, confused, agitated. Somehow do blood test: dangerously low. 
Drink fast-acting carbs kept by bedside.
Do glucagon injection?
~
Feeling sluggish & a bit emotional from that earlier low.
Try not to beat yourself up. Stay positive even after a couple out-of-range tests.
Every fingertip feels sore and tender.
Still, you need to lance one to get a drop of blood.
There is always the backup spot: a thumb tip.
~
 
After rough night, you want to stay in bed.
But no.
Prick finger, test blood. Good number.
Goal today: no highs/lows.
~

Click here to sign up via web.
You will receive a text message with a confirmation code to complete your registration
When you sign up by 4 PM on November 1 through 29, your T1D for a Day challenge will begin the following day.

By the end of this one-day challenge, you will have greater insight into what it means when we say that people with T1D never get a day off.

Participation in T1D for a Day is free of charge.
(Standard text messaging rates apply.)

Are YOU up for the challenge?

Comments

  1. I work for a company that shows strong support for JDRF and have raised money and participated in two century rides so far for the cause. I have a very young customer with T1D and have seen some examples of what her and her parents have to deal with daily. I wish you the best in dealing with T1D Corey! I have written about the ride a couple of times, below is my most recent post from this years ride. I am proud that my company has been able to raise more than $1 million to date and intends to keep going!

    http://journeytomyfirstmarathon.blogspot.com/2012/08/tribute-to-hero.html

  2. Woah boy – that does NOT sound fun. You’re totally right how people (myself definitely included) pay attention to things more once they’re personally affected.
    Tiff @ Love Sweat and Beers recently posted..Shake up the RoutineMy Profile

  3. Oh honey, I know this has been such a struggle and continues to be on an hourly basis. NOT FAIR!!! Especially with the foot issue, too. You deserve a break! What’s amazing is that you stay so positive all the time. You’re an inspiration!!!
    Melissa recently posted..Giving ThanksMy Profile

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  1. […]  November is National Diabetes Awareness Month. Last year, my sister and my friend Karen, accepted my challenge and signed up for the T1D for a Day text challenge. You can read about their experience here. […]

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